It was around 1 or 2am in the morning. I woke up lying on the floor. My body ached, my head was pounding, I had foamed at the mouth, had become very pale, and was physically sick. I had lost all memory of what had happened, and even forgot that I had recently started a new job. For some time, I was confused, in pain, was unsure on what was happening. I was physically exhausted and had no idea on what was wrong. (July 2019)
That morning, I lay in a hospital bed with my mum sat next to me, and the doctor came through and explained that I had had a seizure.
“You can’t drive for the next 6 months, you cannot drink alcohol, and I’ll make a referral for you to see a neurologist”.
My sister explained to me that I was asleep in bed, when all of a sudden, I had rolled out of bed, and was violently convulsing on the floor, I hit my head repeatedly, had gone red in the face. It seemed like I’d stopped breathing and was fighting to breathe and I was making this unpleasant sound through my nose.
October 2019, I was diagnosed with Epilepsy. March 26th is Epilepsy Awareness Day.
Prior to this, I had had 2 ‘seizures’, and one in January 2020.
One was a blackout when I was having a day at Northampton University. It was June 2017, I had eaten and had water, so was well hydrated and fed. All I remember is doing work at the computer, and then I was suddenly being woken up by paramedics… I had no recollection of what happened.
The second seizure was the first one described in this blog – just over 2 years since the last one.
The 3rd seizure happened at the end of January… I was getting ready to go to bed, and the next thing I know is I’m lying by my bedroom floor, and I can hear my mum and sister talking.
“She’s on the floor in the room”
“Mum, the paramedics are here”
After slowly getting up, I realized what had happened. Again, I was physically weak, and in pain from convulsing. I came round very quickly from this seizure, and I now log everything in an Epilepsy Diary. This way I can monitor and keep a record of everything that happens.
Meanwhile… I still wake up everyday, seizing every moment and plodding and enjoying life as usual!
Here is some extra information on Epilepsy 🙂
- 65 MILLION: Number of people around the world who have epilepsy.
- 3.4 MILLION: Number of people in the United States who have epilepsy.
- 1 IN 26 people in the United States will develop epilepsy at some point in their lifetime.
- BETWEEN 4 AND 10 OUT OF 1,000: Number of people on earth who live with active seizures at any one time.
- 150,000: Number of new cases of epilepsy in the United States each year
- ONE-THIRD: Number of people with epilepsy who live with uncontrollable seizures because no available treatment works for them.
- 6 OUT OF 10: Number of people with epilepsy where the cause is unknown (2).
- Children’s Health ‘Seizures in Children: What to Look For and What To do’ Available online at: https://www.childrens.com/health-wellness/seizures-in-children-signs-to-look-for-and-what-to-do Accessed on 22/02/2020
- Epilepsy Foundation ‘1 in 26’ Available online at: https://www.epilepsy.com/make-difference/public-awareness/1-26 Accessed on 22/02/2020